| 翻訳と辞書 |
| PatientsLikeMe ： ウィキペディア英語版 |
PatientsLikeMe
PatientsLikeMe is an online patient network headquartered in Cambridge, Massachusetts. Its website was launched on October 10, 2005 with the goal of connecting patients with one another, improving their outcomes, and enabling research.〔(http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2553248/ Social Uses of Personal Health Information Within PatientsLikeMe, an Online Patient Community: What Can Happen When Patients Have Access to One Another’s Data)〕 PatientsLikeMe was inspired by the life experiences of Stephen Heywood, diagnosed in 1998 at the age of 29 with amyotrophic lateral sclerosis (ALS), or Lou Gehrig’s disease. The company was founded in 2004 by his brothers Jamie and Ben Heywood and long-time family friend Jeff Cole.
==History==
After being diagnosed with ALS, Stephen's family founded a non-profit, ALS Therapy Development Institute, in an attempt to slow his disease and treat his symptoms. However, the slow pace of research and the trial-and-error approach was time-consuming and repetitive.〔http://www.pbs.org/wgbh/pages/frontline/somuchsofast/heywoods/wendy.html〕 They realised that Stephen’s experience was like that of other patients around the world who often have specific questions about their treatment options, and about what to expect. PatientsLikeMe helps patients connect with others who know firsthand what they are going through to share advice and resources. Through a health profile made up of structured and quantitative clinical reporting tools, members are able to monitor their health between doctor or hospital visits, document the severity of their symptoms, identify triggers, note how they are responding to new treatments, and track side effects. They have the opportunity to learn from the aggregated data of others with the same disease and see how they are doing in context with others. Members of the site use social tools such as messageboard forums, private messages, and profile comments to give and receive support from others, a support mechanism that has been shown to help improve their management and perceived control.
抄文引用元・出典: フリー百科事典『 ウィキペディア（Wikipedia）』
■ウィキペディアで「PatientsLikeMe」の詳細全文を読む
スポンサード リンク
| 翻訳と辞書 : 翻訳のためのインターネットリソース |
Copyright(C) kotoba.ne.jp 1997-2016. All Rights Reserved.
|
|